Rob Burrow’s gives me strength!
I’ve just been in bits watching BBC Breakfast piece on Rob Burrows.
Rob has Motor Neurone Disease (MND.)
As I listened to the comments made, by him, his family, real friends and the medical professionals, I kept hearing those same words that I had heard repeatedly. I’m sure many of the feelings that hit us deep are of course, similar, but it was the comments that kept being made related to his MND. They sounded so similar to many I hear relating to Dementia.
I know little of MND. It is the same for most things; we don’t look at them if they don’t affect us directly.
I’ve been looking at MND. First, it does appear that opinions change and vary depending on where you are in the world. Interestingly, in my perspective, was the amount of information related to MND and Dementia. So, the question that hit me was, is there a connection between Dementia and MND? Here is what I found.
Motor neuron disease is a rare, devastating condition which damages the nervous system and leads to paralysis. A small number of people who have motor neuron disease are also diagnosed with a specific type of Dementia called Frontotemporal Dementia, FTD (often called Pick’s disease) which affects personality and behaviour.
There are three facts to note.
1 Both MND and FTD are neurodegenerative diseases and are thought to be caused by a faulty gene.
2 Around 15 per cent of people with FTD will also develop MND.
3 There are several forms of MND, the most common being Amyotrophic Lateral Sclerosis.
Please note; the last two paragraphs are taken directly from, LiveBetterWith website and specifically Dementia.
These statements are similar wherever you look.
So, is there anything that makes me think there is some commonality?
- There is no cure or treatment for MND.
- Only about 5% of MND cases are believed to have genetic links, so 95% are not!
- There are several variations of MND, and no single cause has been found.
- FTD is the most common form of Dementia for people under 60 and the earliest cases from 21.
- FTD brings a gradual, progressive decline in behaviour, language and movement, with memory usually relatively preserved.
Although I have focused on FTD, because this is what is suggested in my findings, I feel that there are far more common factors with Dementia and MND, than not.
Research is vital for Dementia and MND, as with all brain damage related illnesses. Still, I would like to see more research, support and advice on prevention and lifestyle changes as a possibility of reducing the ever-growing cases of Dementia and MND.
It seems that all I get is a checkup to see how far I’ve deteriorated and to be honest, I know!
Rob Burrow’s and so many others like him I see on TV, keep this in our attention.
They give me the strength to continue to fight my demon and to believe it is Never Too Late!
Please comment on anything I have said. Thank You!
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